Aids, family, health professionals and care: an integrative review
DOI:
https://doi.org/10.53660/CLM-4334-24V20Palavras-chave:
Patient-Centered Care, Family, Patient Care Team, HIV, Acquired Immunodeficiency SyndromeResumo
Living with the human immunodeficiency virus is a weakening condition, so it is necessary to understand how the relationships between the social actors involved in the therapeutic processes occur. Summarize the scientific productions about people living with the human immunodeficiency virus, their families and health professionals, in relation to the perception of care during hospitalization. An integrative review study, carried out in indexed virtual databases, the synthesis of evidence occurred in a descriptive way. A total of 364 articles were identified and 43 were analyzed, 13 of which were systematic review studies, 10 were qualitative studies, 08 were quantitative studies, 05 were randomized, 04 were integrative reviews, 03 were mixed methods and one were a case study. It was evidenced that the presence of the family in the care process of people living with the human immunodeficiency virus is a positive factor in the treatment, but the patient and family-centered care model is not fully implemented in health institutions. There is a need for health professionals who meet the demands of listening, touch, sensitivity and with scientific knowledge.
Downloads
Referências
ALBUQUERQUE, A.; ANTUNES, C. M. Tomada de decisão compartilhada na saúde: aproximações e distanciamentos entre a ajuda decisional e os apoios de tomada de decisão. Cad. Ibero Am. Direito Sanit., v. 10, n. 1, p. 203-23, 2021. Disponível em: http://dx.doi.org/10.1590/0034-7167-2019-0525. Access on: 12 aug 2021.
ALMEIDA-BRASIL, C. C. et al. Improving community mobilization in HIV treatment management: practical suggestions from patients in Brazil. Rev. Panam. Salud. Publica, v. 41, e119, 2018. Available from: https://doi.org/10.26633/RPSP.2017.119. Access on: 12 sep 2021
AKATUKWASA, C. et al. Dimensions of HIV-related stigma in rural communities in Kenya and Uganda at the start of a large HIV ‘test and treat’trial. PloS one, v. 16, n. 5, e0249462, 2021. Available from: https://doi.org/10.1371/journal.pone.0249462. Access on: 12 aug 2021.
ALMEIDA BARCELLOS, R.; SGARABOTTO, B. L. Cuidado centrado em pacientes e familiares em terapia intensiva. Res., Soc. Dev., v. 9, n. 8, e55986600, 2020. Disponível em: https://doi.org/10.33448/rsd-v9i8.4400. Acesso em: 12 ago 2021.
BARELLO, S. et al. The caregiving health engagement scale (CHE-s): development and initial validation of a new questionnaire for measuring family caregiver engagement in healthcare. BMC Public Health, v. 19, n. 1, p. 1-6, 2019. Available from: https://doi.org/10.1186/s12889-019-7743-8. Access on: 12 ago 2021.
BASTOS, D. F.; CUNHA, A. J.; SOUZA, A. N. A experiência de alunos do internato em medicina de família e comunidade na condução de entrevistas McGill MINI narrativa de adoecimento com pacientes crônicos com dificuldades de adesão ao tratamento. Rev. bras. educ. med., v. 42, n. 3, p. 16-26, 2018. Disponível em: http://dx.doi.org/10.1590/1981-52712015v42n3RB20170047r2. Access on: 12 aug 2021.
BOTELHO, L. R. et al. Self-assessment of family inclusion in institutional policies and practices: nursing team perspective. Esc. Anna Nery, v. 22, n. 4, e20180207, 2018. Available from: https://doi.org/10.1590/2177-9465-EAN-2018-0207. Access on: 12 aug 2021.
BOUCHER, L. M. et al. Peer-led self-management interventions and adherence to antiretroviral therapy among people living with HIV: A systematic review. AIDS Behav., v. 24, n. 4, p. 998-1022, 2020. Available from: https://doi.org/10.1007/s10461-019-02690-7. Access on: 12 aug 2021.
CARVALHO, P. P. et al. Factors associated with antiretroviral therapy adherence in adults: an integrative review of literature. Ciênc. saúde colet., v. 24, n. 7, p. 2543-2555, 2019. Available from: https://doi.org/10.1590/1413-81232018247.22312017. Access on: 12 aug 2021.
CENTRE FOR REVIEWS AND DISSEMINATION. CRD’s guidance for undertaking reviews in health care. Layerthorpe: University of York, Centre for Reviews and Dissemination. 2009. Available from: https://www.york.ac.uk/media/crd/Systematic_Reviews.pdf. Access on: 22 sep 2021.
CHUAH, F. L. et al. Interventions and approaches to integrating HIV and mental health services: a systematic review. Health Policy Plan., v. 32, supl. 4, p. 27-47, 2017. Available from: https://doi.org/10.1093/heapol/czw169. Access on: 12 aug 2021.
COOK, J. A. et al. Prevalence, comorbidity, and correlates of psychiatric and substance use disorders and associations with HIV risk behaviors in a multisite cohort of women living with HIV. AIDS Behav., v. 22, n. 10, p. 3141-54, 2018. Available from: https://doi.org/10.1007/s10461-018-2051-3. Access on: 12 aug 2021.
CORREIA, T. S.; BARROSO, F. F. The Family and Safety of the Hospitalized Patient: An Integrative Literature Review. Port. J. Public Health, v. 38, n. 2, p. 129-40, 2020. Available from: https://doi.org/10.1159/000511855. Access on: 12 aug 2021.
CRUZ, A. C.; PEDREIRA, M. D. Patient-and Family-Centered Care and Patient Safety: reflections upon emerging proximity. Rev. Bras. Enferm., v. 73, n. 6, e20190672, 2020. Available from: http://dx.doi.org/10.1590/0034-7167-2019-0672. Access on: 12 ago 2021.
CURTIS, J. R. et al. Facilitating communication for critically ill patients and their family members: Study protocol for two randomized trials implemented in the US and France. Contemp. Clin. Trials, v. 107, e106465, 2021. Available from: https://doi.org/10.1016/j.cct.2021.106465. Access on: 12 ago 2021.
DAVIDSON, J. E. et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit. Care Med., v. 45, n. 1, p. 103-28, 2017. Available from: https://doi.org/10.1097/ccm.0000000000002169. Access on: 12 aug 2021.
DE BEER, J.; BRYSIEWICZ, P. The conceptualization of family care during critical illness in KwaZulu-Natal, South Africa. Health SA Gesondheid (Online), v. 22, p. 20-7, 2017. Disponível em: http://dx.doi.org/10.1016/j.hsag.2016.01.006. Access on: 12 aug 2021.
DEAN, L. et al. Neglected tropical disease as a ‘biographical disruption’: Listening to the narratives of affected persons to develop integrated people centred care in Liberia. PLoS Negl. Trop. Dis., v. 13, n. 9, e0007710, 2019. Available from: https://doi.org/10.1371%2Fjournal.pntd.0007710. Access on: 12 aug 2021.
ESHUN-WILSON, I. et al. Being HIV positive and staying on antiretroviral therapy in Africa: a qualitative systematic review and theoretical model. PloS one, v. 14, n. 1, e0210408, 2019. Available from: https://doi.org/10.1371/journal.pone.0210408. Access on: 12 aug 2021.
FAIRALL, L. et al. Collaborative care for the detection and management of depression among adults receiving antiretroviral therapy in South Africa: study protocol for the CobALT randomised controlled trial. Trials, v. 19, n. 1, p. 1-24, 2018. Available from: https://doi.org/10.1186%2Fs13063-018-2517-7. Access on: 12 aug 2021.
FIEST, K. M. et al. A study protocol for a randomized controlled trial of family-partnered delirium prevention, detection, and management in critically ill adults: the ACTIVATE study.BMC Health Serv. Res., v. 20, n. 1, p. 453, 2020. Available from: https://doi.org/10.1186/s12913-020-05281-8. Access on: 12 ago 2021.
FIX, G. M. et al. The temporal nature of social context: Insights from the daily lives of patients with HIV. Plos one, v. 16, n. 2, e0246534, 2021. Available from:https://doi.org/10.1371%2Fjournal.pone.0246534. Access on: 12 aug 2021.
FRANCO, L. F. et al. Patient safety: perception of family members of hospitalized children. Rev. Bras. Enferm., v. 73, n. 5, e20190525, 2020. Available from: http://dx.doi.org/10.1590/0034-7167-2019-0525. Access on: 12 aug 2021.
GILLISS, C. L.; PAN, W.; DAVIS, L. L. Family involvement in adult chronic disease care: reviewing the systematic reviews. J. Fam. Nurs., v. 25, n. 1, p. 3-27, 2019. Available from: https://doi.org/10.1177/1074840718822365. Access on: 12 ago 2021.
GUTIERREZ, D. M.; MINAYO, M. C. Produção de conhecimento sobre cuidados da saúde no âmbito da família. Ciênc. saúde colet., v. 15, supl. 1, p. 1497-508, 2010. Disponível em: https://doi.org/10.1590/S1413-81232010000700062. Access on: 12 ago 2021.
HENDRICKS, L.; ESHUN-WILSON, I.; ROHWER, A. A mega-aggregation framework synthesis of the barriers and facilitators to linkage, adherence to ART and retention in care among people living with HIV. Syst. Rev., v. 10, n. 1, p. 54, 2021. Available from: https://doi.org/10.1186/s13643-021-01582-z. Access on: 12 aug 2021.
KIM; S. K.; PARK, M. Effectiveness of person-centered care on people with dementia: a systematic review and meta-analysis. Clin. Interv. Aging, v. 12, e381, 2017. Available from: https://doi.org/10.2147/cia.s117637. Access on: 12 aug 2021.
KINYANDA, E. et al.. Effectiveness and cost-effectiveness of integrating the management of depression into routine HIV Care in Uganda (the HIV+ D trial): A protocol for a cluster-randomised trial. Int. J. Ment. Health Syst., v. 15, n. 45, p. 1-11, 2021. Available from: https://doi.org/10.1186/s13033-021-00469-9. Access on: 12 aug 2021.
KOKORELIAS, K. M. et al. Towards a universal model of family centered care: a scoping review. BMC Health Serv. Res., v. 19, n. 1, e564, 2019. Available from: https://doi.org/10.1186/s12913-019-4394-5. Access on: 12 aug 2021.
KRISTANTI, M. S.; SETIYARINI, S.; EFFENDY, C. Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training. BMC Palliat. Care, v. 16, n. 4, p. 1-7, 2017. Available from: https://doi.org/10.1186/s12904-016-0178-4. Access on: 12 aug 2021.
LOPEZ, E. J. et al. The changing face of treatment: Mental health concerns and integrated care in an HIV clinic. J. Health Care Poor Underserved, v. 28, n. 1, p. 430-45, 2017. Available from: https://doi.org/10.1353/hpu.2017.0032. Access on: 12 aug 2021.
LOS RIOS, P. et al. Physical, emotional, and psychosocial challenges associated with daily dosing of HIV medications and their impact on indicators of quality of life: findings from the positive perspectives study. AIDS Behav., v. 25, n. 3, p. 961-72, 2021. Available from: https://doi.org/10.1007%2Fs10461-020-03055-1. Access on: 12 aug 2021.
LUSQUIÑOS, A.; MENDES, A.; BENTO, M. O cuidado-centrado na Família da Pessoa em Situação Crítica na Unidade de Cuidados intensivos: Revisão integrativa da literatura. Atas do 8º Congresso Ibero-Americano em Investigação Qualitativa, v. 2, p. 1685-94, 2019. Disponível em: https://ludomedia.org/publicacoes/livro-de-atas-ciaiq2019-vol-2-saude/. Acesso em: 12 ago 2021.
MA, P. H.; CHAN, Z. C.; LOKE, A. Y. Self-stigma reduction interventions for people living with HIV/AIDS and their families: a systematic review. AIDS Behav., v. 23, n. 3, p. 707-41, 2019. Available from: https://doi.org/10.1007/s10461-018-2304-1. Access on: 12 aug 2021.
MEY, A. et al. Motivations and barriers to treatment uptake and adherence among people living with HIV in Australia: a mixed-methods systematic review. AIDS Behav., v. 21, n. 2, p. 352-85, 2017. Available from: https://doi.org/10.1007/s10461-016-1598-0. Access on: 12 aug 2021.
MUKUMBANG, F. C. et al. Household-focused interventions to enhance the treatment and management of HIV in low-and middle-income countries: a scoping review. BMC Public Health, v. 19, n. 1, p. 1-4, 2019. Available from: https://doi.org/10.1186/s12889-019-8020-6. Access on: 12 aug 2021.
PAGE, M. J. et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ, v. 372, n. 71, p. 1-9, 2021. Available from: https://doi.org/10.1136/bmj.n71. Access on: 07 oct 2024.
PANTELIC, M. et al. Multiple forms of discrimination and internalized stigma compromise retention in HIV care among adolescents: findings from a South African cohort. J. Int. AIDS Soc., v. 23, n. 5, e25488, 2020. Available from: https://doi.org/10.1002/jia2.25488. Access on: 12 aug 2021.
QUINTANILHA, A. C.; NASCIMENTO, V. A.; SOUZA, A. S. Perception of the person who lives with hiv/aids and their families in relation to the care in the hospitalization. International Journal for Innovation Education and Research, v. 9, n. 7, p. 153-72, 2021. Available from: http://doi.org/10.31686/ijier.vol9.iss7.3206. Access on: 22 Sep 2021.
SANSINENEA, E. et al. Being yourself and mental health: Goal motives, positive affect and self-acceptance protect people with HIV from depressive symptoms. Journal of Happiness Studies, v. 21, n. 2, p. 593-612, 2020. Available from: https://doi.org/10.1007/s10902-019-00098-7. Access on: 12 aug 2021.
SEAMAN, J. B. et al. Protocol and fidelity monitoring plan for four supports. A multicenter trial of an intervention to support surrogate decision makers in intensive care units. Ann. Am. Thorac. Soc., v. 15, n. 9, p.1083-91. Available from: https://doi.org/10.1513%2FAnnalsATS.201803-157SD. Access on: 12 aug 2021.
SCOTT-SHELDON, L. A. et al. Behavioral interventions targeting alcohol use among people living with HIV/AIDS: a systematic review and meta-analysis. AIDS Behav., v. 21, n. 2, p. 126-43, 2017. Available from: https://doi.org/10.1007/s10461-017-1886-3. Access on: 12 aug 2021.
SNGER, J.; WENSING, M.; THOMAS, M. The Heidelberg Milestones Communication Approach (MCA) for patients with prognosis< 12 months: protocol for a mixed-methods study including a randomized controlled trial. Trials, v. 19, n. 1, p. 1-3, 2018. Available from: https://doi.org/10.1186/s13063-018-2814-1. Access on: 12 aug 2021.
SOUZA, L. S. et al. Avaliação da Funcionalidade Familiar em Pessoas Idosas Convivendo com HIV/AIDS. Rev. Recien., v. 11, n. 33, p. 99-106, 2021. Disponível em: https://doi.org/10.24276/rrecien2021.11.33.99-106. Acesso em: 12 set 2024.
SOUZA, M. T.; SILVA, M. D.; CARVALHO, R. D. Revisão integrativa: o que é e como fazer. Einstein (São Paulo), v. 8, n. 1, p. 102-6, 2010. Disponível em: https://doi.org/10.1590/S1679-45082010RW1134. Access on: 12 ago 2021.
STILLWELL, S. B. et al. Evidence-based practice, step by step: searching for the evidence. Am. J. Nurs., v. 110, n. 5, p. 41-7, 2010. Available from: https://doi.org/10.1097/01.naj.0000372071.24134.7e. Access on: 12 aug 2021.
TEMPERLY, N. K.; JUNIOR, H. S.; SILVA, M. Z. Do vínculo ao encontro cuidador: cartografias sobre o território identitário médico e o cuidado entre médicos de família e usuários. Interface (Botucatu), v. 25, e200341, 2021. Disponível em: https://doi.org/10.1590/interface.200341. Acesso em: 12 ago 2021.
TOUPIN, I. et al. Developing a patient-reported outcome measure for HIV care on perceived barriers to antiretroviral adherence: assessing the needs of HIV clinicians through qualitative analysis. Qual. Life Res., v. 27, n. 2, p. 379-88, 2018. Available from: https://doi.org/10.1007/s11136-017-1711-5. Access on: 12 aug 2021.
TOURETTE-TURGIS, C.; PEREIRA-PAULO, L. Reconhecer a experiência e a expertise do doente. Revista da FAEEBA-Educação e Contemporaneidade, v. 25, n. 46, p. 33-44, 2016. Disponível em: https://doi.org/10.21879/faeeba2358-0194.2016.v25.n46.p33-44. Acesso em: 12 ago 2021.
UNAIDS. Seizing the moment: tackling entrenched inequalities to end epidemics. 2020. Available from: https://www.unaids.org/en/resources/documents/2020/global-aids-report. Access on: 22 sep 2021.
VALAITIS, R. K. et al. An evaluation study of caregiver perceptions of the Ontario’s Health Links program. PloS one, v. 15, n. 2, e0229579, 2020. Available from: https://doi.org/10.1371/journal.pone.0229579. Access on: 22 Sep 2021.
VILLAR, V. C.; DUARTE, S. D.; MARTINS, M. Patient safety in hospital care: a review of the patient’s perspective. Cad. Saúde Pública, v. 36, n. 12, e00223019, 2020. Available from: https://doi.org/10.1590/0102-311X00223019. Access on: 22 sep 2021.
WHITTEMORE, R.; KNAFL, K. The integrative review: updated methodology. J. Adv. Nurs., v. 52, n. 5, p. 546-53, 2005. Available from: http://dx.doi.org/10.1111/j.1365-2648.2005.03621.x. Access on: 12 aug 2021.
